The fight against HIV and AIDS continues to evolve, with major progress in care and awareness. However, health disparities persist, particularly in the Southern United States, which experiences higher rates of new HIV diagnoses than any other region in the country. This stark reality underscores the importance of local and national initiatives that focus on reducing stigma and expanding access to care, particularly in underserved communities. Dewayne Crowder (Executive Director of A Vision 4 Hope), Donnisha Patterson, MNPA (Executive Director of Brotherhood Inc.) and Shadawn McCants (Licensed Professional Counselor at Black Ladies in Public Health) are at the forefront of this movement, using their personal stories and community-based work to lead impactful initiatives.
Their work was recently highlighted during the “Sounds of the South” plenary session at the United States Conference on HIV/AIDS (USCHA) in New Orleans, hosted by ViiV Healthcare. This event celebrated the resilience, stories, and music of the South while showcasing the critical role local communities play in transforming the HIV/AIDS landscape.
“Sounds of the South”: A Cultural and Advocacy Event
The “Sounds of the South” plenary session, sponsored by ViiV Healthcare, marked the organization’s 15-year commitment to the Southern U.S. and its ongoing efforts to support communities most affected by HIV. This immersive experience celebrated the region’s unique culture, combining music and advocacy to create a space where important conversations about HIV could take place.
The session featured musical performances by bounce artist Big Freedia and rising country star Reyna Roberts, along with representatives from leading HIV advocacy organizations, including Crowder’s A Vision 4 Hope and Patterson’s Brotherhood Inc., as well as Black Ladies in Public Health, Arianna’s Center, Eagle Pass SAFE, and The Afiya Center. The event honored both the cultural heritage and the resilient voices that have shaped the South’s response to HIV, past and present.
Celebrating Southern Resilience
In addition to the performances, “Sounds of the South” provided a platform for HIV advocates like Crowder, Patterson, and McCants to share their personal journeys and discuss the ongoing challenges in the fight against HIV, particularly in the Southern U.S. Their participation brought critical perspectives to the forefront, focusing on the experiences of marginalized communities and the innovative ways organizations are addressing healthcare disparities.
Crowder’s A Vision 4 Hope and Patterson’s Brotherhood Inc. were also recognized for their innovative approaches to community health in the Southern U.S., addressing not only HIV prevention but also the broader social determinants of health, such as housing and mental wellness.
“This event is about more than just music or culture; it’s about acknowledging the work being done on the ground to address HIV disparities in the South. There are still so many barriers to care here, but we’re working to change that every day, through education, outreach, and community partnerships,” Crowder says.
Crowder’s journey into advocacy began at the age of 19 when he witnessed the lack of resources available to the LGBTQ+ community, particularly those living with HIV. Growing up in Memphis, Crowder was motivated to take action, recognizing how healthcare disparities negatively impacted marginalized populations. Through his work with A Vision for Hope, Crowder has led initiatives aimed at reducing stigma, expanding access to healthcare, and educating individuals about HIV prevention and treatment.
Crowder’s advocacy has focused on addressing the significant health disparities in the Southern United States, where individuals, particularly in Black and Brown communities, face systemic barriers to HIV care. He has championed the use of pre-exposure prophylaxis (PrEP) and injectables as crucial methods for preventing HIV transmission. Crowder’s work is driven by his passion for breaking down the stigma associated with HIV, and his efforts have created life-changing opportunities for many individuals who had previously been underserved by traditional healthcare systems.
“One of the biggest challenges is that a lot of people still look at HIV as an LGBTQ+ disease, but it affects everyone. We have to create a cultural shift that resonates with the entire community, not just those historically associated with the disease,” Crowder adds.
Patterson’s advocacy began when a close friend was diagnosed with HIV while pregnant. This deeply personal experience inspired Patterson to join Brotherhood Inc. in New Orleans, an organization that provides critical HIV education and support to underserved communities. She started volunteering in 2018 and later became the Executive Director, leading efforts to educate the public, reduce stigma, and expand access to health resources.
Brotherhood Inc. has focused on community outreach, ensuring that those in marginalized areas receive the necessary information about HIV prevention and treatment, while also addressing broader issues like housing and mental health.
“We make sure we keep the message in front of people’s faces. Whether it’s at a bar, church, or second line, we’re out there, spreading awareness. People need to know that condoms, testing, and PrEP are available, and that if you’re living with HIV, you can be undetectable and thrive,” Patterson shares.
Under Patterson’s leadership, Brotherhood Inc. has implemented programs that meet people where they are—both geographically and emotionally—breaking down the barriers that have long prevented underserved communities from accessing the care they need.
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A Platform for Storytelling and Advocacy
The “Sounds of the South” session also provided an opportunity for Crowder, Patterson, and McCants to utilize their personal stories as a powerful reminder of the importance of humanizing the conversation around HIV, especially in communities where discussing sexual health is still considered taboo.
“I’ve always believed that my story isn’t just my own. It’s tied to someone else’s healing and their ability to live authentically. I’m proud to be a part of events like this because it brings attention to the work we’re doing—not just to treat HIV, but to help people heal from the trauma and stigma associated with it,” McCants says.
McCants has spent years helping individuals heal from trauma and pain as a licensed counselor and public health advocate. Diagnosed with HIV at just 17, McCants uses her personal experience to empower others, particularly Black women and young Black girls. Her nonprofit organization, To Know is To Live, works to educate Black communities about sexual health and the importance of knowing your HIV status, helping individuals move from a mindset of fear and stigma to one of empowerment and self-care.
McCants is also a leader in ViiV’s Risk to Reasons campaign, which shifts the narrative around HIV from one of risk to one of personal reasons for prevention and care. Through this initiative, she advocates for Black women to take control of their health and live authentically, regardless of their diagnosis.
McCants’ advocacy also focuses on ensuring that Black women see themselves in the conversation about HIV, challenging the misconception that HIV is only a “gay man’s disease.”
“We’ve come a long way in terms of treatment, but there’s still so much work to be done, especially when it comes to making sure that Black women, young people, and those in rural areas have the same access to care and support. This event was a reminder that we can’t stop until everyone is seen and heard,” McCants notes.
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The Ongoing Fight for Equality and Awareness
The “Sounds of the South” event marked an important moment in the ongoing fight against HIV in the South, shining a spotlight on the advocates and organizations working tirelessly to bring about change. Through their collective efforts, Dewayne Crowder, Donnisha Patterson, and Shadawn McCants continue to lead the charge in HIV advocacy, using their platforms to challenge stigma, expand access to care, and uplift the voices of those most affected by the virus.
As these advocates continue their work, they remain committed to ensuring that the progress made in HIV care reaches every corner of the South. Whether through music, storytelling, or community-based outreach, their message is clear: the fight against HIV is far from over, but with the right support and resources, a healthier, more equitable future is possible for all.
Tips for Protecting Yourself Against HIV and AIDS
In addition to sharing their advocacy work, Crowder, Patterson, and McCants offered practical insights for individuals and communities looking to take action in the fight against HIV. Here are some key takeaways and tips for those looking to get involved or improve their understanding of HIV care:
1. Know Your Status
One of the most crucial steps in HIV prevention is getting tested. Early detection leads to better health outcomes, and knowing your status helps reduce the spread of the virus.
- Tip: Schedule regular HIV tests as part of your routine healthcare, especially if you’re sexually active or belong to a higher-risk group.
- Resources: Many local health departments and community organizations, like Brotherhood Inc. and A Vision 4 Hope, offer free and confidential HIV testing.
“Knowing your status is the first step to taking control of your health. It’s not about fear, it’s about empowerment,” McCants shares.
2. Understand Prevention Options
With advancements in HIV prevention, tools like pre-exposure prophylaxis (PrEP) can significantly reduce the risk of contracting HIV. It’s essential to know the options available for preventing HIV transmission.
- Tip: Learn about PrEP and other prevention tools from your healthcare provider or community organizations.
- Recommendation: If you are in a relationship with someone living with HIV or engage in behaviors that increase your risk, talk to your doctor about PrEP.
“We’ve made tremendous progress with prevention methods like PrEP and injectables, but many in underserved communities still don’t know these options exist. We need to spread the word,” Crowder says.
3. Challenge Stigma
Stigma remains one of the biggest barriers to care. Whether you’re living with HIV or supporting someone who is, it’s important to challenge misconceptions and foster open conversations about HIV.
- Tip: Educate yourself and others about HIV and correct harmful stereotypes. Normalize discussions about sexual health, HIV prevention, and care.
- Action: Participate in awareness campaigns like ViiV’s Risk to Reasons initiative, which reframes the conversation around HIV from one of risk to one of empowerment.
“We have to be out there, making sure people know that living with HIV is manageable, and it’s not something to be ashamed of. Knowledge is power,” Patterson adds.
4. Engage in Community-Based Outreach
Community outreach is critical in reaching those who may not have access to traditional healthcare services. Many of the most effective HIV awareness campaigns take place in non-traditional spaces, such as bars, churches, and community festivals.
- Tip: Partner with local organizations to help raise awareness. Volunteering your time or participating in outreach events can make a significant impact.
- Example: Events like “Sounds of the South” show how combining cultural elements, such as music, with HIV education can create powerful moments of change.
5. Advocate for Equitable Healthcare
Access to healthcare is still a major barrier for many living with or at risk of HIV, particularly in rural and underserved communities. Advocating for equitable access to care is vital for improving health outcomes.
- Tip: Support policies and programs that increase healthcare access for marginalized communities. Advocate for funding to expand HIV testing, prevention, and treatment services in areas that are most affected by health disparities.
- Example: Organizations like A Vision 4 Hope and Brotherhood Inc. are models for community-driven solutions that address the needs of those most impacted by HIV in the South.
“We know there are systemic barriers keeping people from accessing the care they need. It’s our job as advocates to ensure everyone has the same opportunity to live and thrive,” McCants says.
6. Leverage Resources and Networks
Connecting with local organizations and resources is essential in the fight against HIV. Many advocacy groups offer educational workshops, testing events, and support services to those affected by HIV.
- Tip: Use community resources like Brotherhood Inc., A Vision 4 Hope, or To Know is To Live to stay informed, get tested, and connect with others who can provide support.
- Action: Attend local HIV/AIDS awareness events and conferences like USCHA to learn more about what’s being done on the ground and how you can contribute.
“There are resources out there—housing support, food security programs, mental health services—that many people don’t know about. Our job is to make sure they know help is available,” Patterson says.
7. Empower Yourself and Others
If you’re living with HIV, know that you have the power to live a healthy, fulfilling life. Crowder, Patterson, and McCants emphasize the importance of taking control of your health and advocating for yourself in healthcare settings.
- Tip: Build a strong support network of friends, family, and healthcare providers who understand your needs and can provide the care and encouragement you need to thrive.
- Recommendation: If you’re comfortable, consider sharing your story to help reduce stigma and empower others to seek care.
“We are inherently amazing, dope individuals. Living with HIV doesn’t change that. It’s about embracing your truth and living authentically,” McCants concludes.
